Guys, since I’ve been having the most difficult time downloading my painting tutorial today, I’m sharing my hair tutorial instead! The painting tutorial is still coming tomorrow, but it’s not quite ready 🙂
This hairstyle has been great in all of this MN rain, wind, and humidity because it’s a little messy by nature!
Correction and Update on W’s Ultrasound:
In case you saw my instagram post this AM, I wanted to clarify something and thankfully admit that I remembered something wrong from when Wolfgang was first diagnosed with his genetic thing this past year… gosh, I feel like the Fake News media, getting facts wrong here. So sorry! :/
First, I want to say that as a protective mom and a natural-born worrier, I have been trying to hold onto my son’s health and pretend it’s something I can fix or control, but lately I’ve been working really hard on giving that anxiety to God because I’ve been only hurting myself when I worry that much. I encourage you– if you’re holding on to something (anything) that you need to let go of and let God handle– please go on this journey with me. Let’s bring those issues to Him and ask Him to care for those problems instead of you. We weren’t made to shoulder such burdens alone.
So, back to Wolfgang… this past fall he was diagnosed with a genetic disorder that increases his chance of getting childhood cancer due to abnormal cell division. I mistakenly said in my post that kids with that diagnosis have a 90% cancer risk, but THANK GOD I was wrong. His chance is actually somewhere between 10-20%, depending on which study you want to reference. That makes him 6x more likely than the average kid to get cancer… but– again– I’m just thankful my memory was wrong!
The reason I mentioned the information above in my post is that Wolfgang has monitoring every 3 months to check for tumors and his appointment was this morning. The way they check him is by taking blood labs and an ultrasound of his abdomen. (We used to take him in every 6 weeks for labs and then every 3 months for the ultrasound, but our geneticist said new research showed no benefit of staggering the blood and ultrasound work). ANYWAY, shortly after his last ultrasound, I noticed a bump on his collarbone. The doctor wanted to check it for growth before doing testing so we waited. But over the last 4-6 months it has gotten quite a bit bigger and it really started to worry us.
Thankfully, the ultrasound technician had positive words for us today as we wait for the actual results from the doctor. The tech knew we were worried so she popped into the radiologist’s office quick to see if the images were good and to see what he thought. When she returned, she said from the initial look, everything looked good and that the hard growth on the collarbone had limited blood flow (good I guess) and that it looked like it could be a swollen lymph node since we had told her Wolfgang had been sick a lot this past winter.
Having a swollen lymph node for that many months still concerns me, but I’m glad to hear it doesn’t look like a tumor! AND I’m glad to have gotten my stats wrong because that gives my little boy a much brighter future!
Regardless of the percentages, please pray for our son as he continues this monitoring (it will continue until he’s either 6 or 7 years old, from what we have heard from our geneticist).
I will keep you updated once we hear back from the pediatrician or geneticist on the results.